THE LAST WEEK OF JULY MY DAUGHTER HAD AN OVERNIGHT BOUT OF SEVERE DIARREAH, A COUPLE OF DAYS LATER HER JAW STARTED HURTING SO BAD THAT SHE COULDN'T EAT ANYTHING SHE HAD TO CHEW, AND BOTH SIDES OF HER JAWS WERE SLIGHTLY SWOLLEN. I MADE AN APPT. W/ A DR.. THE DAY OF HER APPT. (THE NEXT DAY) MY DAUGHTER WOKE UP CRYING AND CRAWLED OUT OF HER ROOM BECAUSE HER FEET AND ANKLES WERE EXTREMELY SWOLLEN, THEY WERE NOT BRUISED OR DISCOLORED IN ANYWAY, BUT SHE WAS IN EXTREME PAIN. THE DR.TOLD ME THAT SHE HAD STREP THROAT JUST BY LOOKING AT THE SWAB, SAID THAT THERE WAS BLOOD IN HER URINE, AND THAT HER SED RATE WAS HIGH, BUT SHE DIDN'T KNOW WHERE THE INFECTION WAS COMING FROM, AND THE RHEUMATOID FACTOR WAS NEGATIVE, THIS WAS 08-09-2005, SHE GAVE HER A SHOT OF ROCEFIN IN HER OFFICE ALONG WITH A PRESCRIPTION FOR AMOXOCILLIN, AND TOLD ME TO GIVE HER IBUPROFEN FOR THE PAIN. NOTHING HELPED AND SHE ONLY GOT WORSE (I DIDNT AGREE WITH THE STREP BECAUSE SHE NEVER HAD A FEVER, OR A RED OR SORE THROAT). OUR DR.,A WEEK LATER SAID SHE WAS FINE AND SENT US HOME. A FEW DAYS LATER SHE CAME OUT OF THE TUB WITH PETECCHAIE ALL OVER HER FEET AND ALL THE WAY UP TO HER KNEES, SO I TOOK HER TO THE ER WHERE THEY DIAGNOSED HER WITH POST-STREPTOCCOCAL VASCULITIS C WITH PETECCHAIE AND ARTHRALGIS, THEY PUT HER ON 25MG OF PREDNISONE 3X A DAY FOR 4 DAYS, SAID SHE WAS LOW ON POTASSIUM, AND SLIGHTLY DEHYDRATED,AND GAVE HER IV ANTIBIOTICS, THE ONLY CHANGE WAS THAT THE PETECCHAIE WENT AWAY, BUT WAS BACK AFTER 2 DAYS, AND SHE STILL WASNT WALKING BECAUSE OF THE PAIN AND SWELLING, ALL SHE DID WAS CRY. I TOOK HER A COUPLE OF DAYS LATER TO PHOENIX CHILDRENS HOSP. WHERE THEY ADMITTED HER WITHIN 45 MIN. THEY TOOK 23 TUBES OF BLOOD AND TESTED HER EXTENSIVLEY; AFTER A WEEK THEY HALF HEARTEDLY DIAGNOSED HER WITH REACTIVE ARTHRITIS DUE TO THE STREP, AND SAID IF SHE WASN'T BETTER IN 2 WEEKS, TAKE HER TO A RHUEMATOLOGIST. TODAY (9-13-05)THE ORIGINAL DR. THAT DIAGNOSED HER WITH STREP CALLED (6-7 WEEKS LATER) AND SAID THAT MY DAUGHTER TESTED NEG. FOR STREP THROAT, TOLD ME THAT THEY COULD NOT FIND THE URINE TEST RESULTS AND THAT HER SED RATE AT THE TIME WAS HIGH. I HAVE CALLED SEVERAL TIMES FOR THE RESULTS AND HAD FINALLY GIVEN UP A MONTH AGO.AFTER THIS STRANGE PHONE CALL I CALLED HER DRS. AND MY INS. CO. WHO TOLD ME TO GET HER INTO SEE AN INFECTIOUS DISEASE DR. IMMEDIATLEY. WE ARE GOING INTO THE 7TH WEEK OF THIS AND THE THIRD COURSE OF ANITBIOTICS AND SECOND COURSE OF STEROIDS. MY DAUGHTER STILL CANNOT WALK EVEN WITH THE WALKER THAT THE HOSP. SENT HER HOME WITH BECAUSE SHE CANT BEAR ANY WEIGHT ON HER FEET, THE PETICCHAIE IS BACK AND THE PAIN HAS SPREAD NOW TO HER RIGHT KNEE,MOST OF THE PAIN HAS BEEN IN THE RIGHT FOOT EVEN THOUGH IT STARTED IN THE LEFT FOOT, NOW IT GOES BACK AND FORTH FROM ONE FOOT TO THE OTHER, HER JAW STILL HURTS HER AT TIMES BUT NOT LIKE BEFORE. WE ARE BOTH EXTREMELY FRUSTRATED AS SHE CANNOT WALK, SHE HAS MISSED A MONTH OF SCHOOL AND IS IN CONSTANT PAIN WITH LITTLE TO NO RELIEF EVEN WITH THE PAIN MEDS THEY GAVE HER (5MG OXYCODONE- 30 TABS- 1EVERY 6 HOURS) I HAVE STARTED GIVING HER 2 EVERY 4 HOURS WITH HARDLY ANY RELIEF. SHE ONLY HAS ENOUGH FOR TOMORROW AND OUR APPT. IS NEXT TUES. PLEASE HELP US!!!
THANK YOU,
SCARED MOM & DAUGHTER
Edited by Customer (name blocked for privacy) on September 14 2005 at 5:13am
