I can totally understand your concerns. In about 10% of cases, ALS is caused by a genetic defect. In other cases, the cause of the nerve deterioration is unknown.
There are two courses of action you should take:
1. See a neurologist. He can do an EMG to detect abnormal activity. He can also do other tests to rule out other causes.
2. See a genetic counselor. They can do genetic testing to see if you have the gene.
What I have suggested will give you answers that you are looking for - without getting the "run around". And if they are negative, you will have a piece of mind.
Hope this helps! Best of luck.
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