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Sent to Health Experts September 28 02:24 PM

Are there any foundations for people with lymphangioma?

 

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Male , Age: 20

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September 28 2:54 PM (29 minutes and 52 seconds later)
         
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Hello,

These are some of the BEST support groups and organizations for people afflicted with Lymphangioma or other related disorders:

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March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)428-7100
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

National Lymphatic and Venous Diseases Foundation, Inc.
70 Heritage Ave
Unit 9
Portsmouth, NH 03801
USA
Tel: 6033348600
Fax: 6033346464
Tel: 8003012103

Cystic Hygroma Support Group
55 Jewel Walk
Bewbush
Crawley, Intl RH11 8BH
United Kingdom
Tel: 01293 571545

Lymphovenous Canada
8 Silver Ave
Toronto
Ontario, Intl M6R 1X8
Canada
Tel: 416-533-2428
Fax: 416-539-8348
Email: info@lymphovenous-canada.ca
Internet: http://www.lymphovenous-canada.ca

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Hope this helps! --Dr. Steve



Edited by strssk on September 28 2006 at 2:56 PM

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