hi, need some real help,my son is 3 years old,he had ...

Is the surgery still an option if waiting for the diaphragm to re-inervate is unsuccessful? Will waiting put your son at a higher risk (when compared to risks associated with the surgery) for further infections and/or other complications?

Thanks in advance.

Steve


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surgery is still an option,but some of the team (surgens)feel that the surgery is the only opsion,and some say that we should wate,but how long and if any...thanks steve...p.s. having the surgery has risk of infections,and wating has also risks of infections becouse his lungs arnt inflating fully,but surgery has risk of spreading pnuemonia to blood steam,and the risk of wating is that more infections could settle in the chest or lungs,(what a chioce huh...}

Edited by Customer (name blocked for privacy) on April 28 2006 at 4:44pm

Joseph,

My heart goes out to you and your son.

Because I am not a physician -- and I cannot know all of the risks/variables involved with each option -- there is no way that I can offer a valid opinion on which option you should choose for your son.

That said, I am a parent, I have a disability, and I have worked professionally (in rehabilitation and as a chaplain) with physicians. Based on this experience, I recommend you take the following steps in arriving at the best option for your son:

1.) Pin the doctors down on why they are in favor of one option over another. Ask about comparative risk for each option. Ask if your son's DiGeorge syndrome places him at any additional risk with either or both options.

2.) Specifically ask the doctors who are in favor of surgery -- what risks are involved in waiting for the diaphragm to re-inervate.

3.) Ask the doctors which option they would choose for their own child.

As you face making the decision, I recommend that you trust your 'gut' -- Well you cannot know everything, remember that you are your son's father for a reason. Your love and compassion for him will enable you to make a good decision.

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Let me know if you need more input. If not, thanks for the opportunity to assist you... Please honor my efforts by Clicking the green 'Accept' button (located within this post -- above-right). Adding a bonus -- should you wish to do so -- would be warmly welcomed.

Good Luck!

Steve



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