Bill - I'm so sorry to hear about this turn of bad luck. I know you've been through a great deal, and you must be pretty tough from all of this.
You don't mention where you are in Alaska, but even in Anchorage (which, if memory serves me, is a city of 200,000+) your options for an orthopedist who is a real pro treating knee replacement revision, and your developing hip pain (which I think is most likely related to the knee, I agree with you there) will be limited.
You may indeed need to at least consult with someone out of the state. Although I'm not an orthopedist myself, I was planning on going into ortho, so I know a little about it. There are a number of "centers of excellence" in orthopedics, and depending on what exactly you are seeking, these will vary a bit. Vail might indeed be one of these locations, but in my experience, some of the best orthopedists are located in the larger cities in the US (NY, Pittsburgh, Iowa, and CA all have many fine practitioners). Nevertheless, depending on your exact situation, one provider might be better than another for you.
I assume that your orthopedist has suggested fusion of the fibula? This might, indeed, be a great option - but again, depending on where you go and who you talk to, opinions will vary. Some physicians are renowned as the "best in the business", and in my opinion, if I was in your position, I would want to get the best opinion available if I could.
If you haven't had an MRI already, then it can't hurt (so long as with your prostheses this is o.k.). It could help show what the problem is, and if you are able to get a good list of your symptoms, and a description of your physical exam, in conjunction with this MRI (and the other studies that have been done) you might get someone out of town to take a look at your case and give you an opinion. Often, if a physician thinks that someone else might be better-suited to perform a surgery, then they will refer you to them. So, Philipon (if he is a good choice, I'm not familar with him) could even refer you to someone else, as well, if that is the best option.
As far as prolotherapy is concerned, I don't know too much about it. But, if I was you, I would definitely want to run the idea by my orthopedist first to get their o.k. before I tried it. Prolotherapy involves injections in the tendons/ligaments, and could, if performed incorrectly or in the wrong place potentially be dangerous. Then again, there may be substantial evidence that it could help you. Your orthopedist would be the best one to discuss this with, as they'll know your entire case.
It sounds like you're doing all of the right things - the PT, the home exercises, etc. But this may be progressing anyhow. So I think, like you suspect, it is time to get moving on a solution for this.
I suffered from a few slipped cervical discs last year and had to have a fusion. So I know what a pain in the neck that can be. I hope it's at least tolerable.
So - speak with your orthopedist and tell him/her you want a second or third opinion. Ask for the names of the "best in the business", even in the lower 48, to help with this, and get in touch with them. Place a call, and see how they would consider your case, and what they would need. Hopefully, they'll be able to oblige. And, again, run the prolotherapy by your doc first, before you start, just to make sure. We can't afford for anything else to go wrong with your knees and hips.
I hope this helps. Please let me know if you have any further questions - I'm more than happy to try and help.
Take care and hope you feel better - Dr. Fay
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